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Links to Visit

The links on this page have been provided for informational purposes only. 
Listings which appear on this site do not denote endorsement by SPAN.

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Download IDEA

Adopted Special Education Code (NJAC 6A:14)

Family Educational Rights and Privacy Act (FERPA)

MEDICAID LAW - OVERVIEW GUIDE

http://www.healthlaw.org/library.cfm

Aging Out of Early and Periodic Screening, Diagnostic and Treatment (EPSDT): Issues for Young Adults with Disabilities

http://www.kff.org/medicaid/upload/7491.pdf 

 

Final Regulations for No Child Left Behind:  Title I -- Improving the Academic Achievement of the Disadvantaged
 Final Rule is available now at: http://www.ed.gov/offices/OESE/SASA/cepprogresp.html#reg.  Before you send it to your printer, note that this document is 300 pages.  For additional information from the United States Department of Education about NCLB, visit www.nclb.gov.

National Institute for Urban School Improvement

"The Right to Special Education in New Jersey: A Guide for Advocates"
prepared by the Education Law Center of New Jersey (ELC)

NJ Association of Partners in Education

International Leadership Association  

Chinese Resources

NAMI
(Nat'l Alliance for the Mentally Ill) email namichinesegroup@yahoo.com 
Chinese Autism Resources and also online support group  chinese_autism_center@yahoo.com 

The Arc

NICHCY National Information Center for Children and Youth with Disabilities

National Parent Information Network

National Easter Seals Society

National Families in Action

National Institute of Child Health and Human Development
Hereditary Disease Foundation

National Mental Health Association Information Center

Family Village - A Global Community of Disability-Related Resources

The National Association for the Education of Young Children (NAEYC) 

American Academy of Pediatrics

Child Welfare League of America

Children's Defense Fund

National Association of Child Advocates

LDOnline 

National Association of Partners in Education, Inc. 

The National Center for Community Education (NCCE) 

N.O.R.D (National Organization for Rare Disorders, Inc.) 

National Center for Children in Poverty

National Institute on Drug Abuse 

National Clearinghouse on Child Abuse and Neglect Information 

National Center On Outcomes Research (NCOR)

Social Security Administration

TASH 

National Coalition of Advocates for Students

Center for Education Reform 

Cadre - dispute resolution, including online video on mediation

NCLB Grassroots.org

 Brings into focus growing local opposition to controversial school reforms 

Positive Parenting


Parent Training Information Centers (PTIs), Resource & Advocacy Centers 
and other Non-Profit Organizations:

The Resource Room

Action Without Borders

NJ Center for Non-Profit Organizations

Parent Training & Information Centers (PTI) 

Parent Advocacy Coalition on Educational Rights (PACER)

The NonProfit Gateway 

Disability Advocacy Work With Networking (DAWWN)

Families USA Foundation

SNAP Online: Special Needs Advocate for Parents

Family Support 
Center of NJ

Family Voices

Websites on Self Advocacy and Careers for Teens

Career Cruising – An interactive career guidance resource with 800 multimedia interviews, does not address disabilities, but provides detailed information about jobs in a youth-oriented format. Fee to subscribe, can try it for free http://www.careercruising .com/home/default.asp Career Development Strategies – information for youth from the Wisconsin Workforce Development Career Center http://www.dwd.state.wi.us/ careers/_hide/career.htm 

Career Information for youth from the US Bureau of Labor Statistics http://www.bls.gov/k12/ html/edu_over.htm 
text version 
http://www.bls.gov/ k12/text/edu_text.htm

CareerScope: This program features software for a self-administered assessment of career interests and aptitudes. Supplemental counseling tools also provide career awareness and exploration activities. http://www.vri.org

Career Voyages -- information for youth from the US Departments of Labor and Education  http://www.careervoyages.gov/ Career Zone – Provides students with job descriptions, estimated wages and career potential for over 1,100 occupations http://www.nycareerzone.org/ index.jsp Disabled and Proud – disability awareness web site http://www.disabled andproud.com/ Entry Point! offers outstanding internship opportunities for students with disabilities in science, engineering, mathematics, and computer science http://www.entrypoint.org/ 
Job Accommodation Network – provides information about job accommodations, the employability of people with disabilities, and the ADA http://www.jan.wvu.edu/  Jobland  -- information for youth from the Tomkins Workforce Center New York. Click on “Full Youth Integration Website” and then “Joblandhttp://www.tompkins workforceny.org/youth.htm   Kids as Self Advocates  http://www.fvkasa.org/ LifeWorks a interactive web site for teens featuring information on more than 100 careers in the health and medical sciences from the National Institutes of Health, Office of Science Education http://science.education. nih.gov/LifeWorks
Minnesota Statewide Family Network -- Online favorites of the MSFN Youth Advisory Board   http://www.cmhn.org/ aboutus.htm#advocacy National Youth Leadership Network http://www.nyln.org/index.html Partners in Employment is a self-study course designed to help people with developmental disabilities find meaningful jobs and jumpstart their careers.  http://www.partnersin policymaking.com/employment/ O*NET OnLine – is a website for finding out about occupations and the kinds of skills needed for different jobs http://online.onetcenter.org/ 
The Work Site: Information for Youth With Disabilities from the Social Security Administration:  http://www.ssa.gov/work/ Youth/youth.html Youth Corner  -- information for youth from the US Department of Labor http://www.doleta.gov/ youth_services/yocorner/ 

text version 
http://www.doleta.gov/ youth_services/ yocorner/index-text.cfm

Youth Jobs (Canada)  http://www.youthjobs.ca/ who.html Zigawhat! a web site with links to numerous Internet sites for teens with disabilities maintained by the National Dissemination Center for Youth with Disabilities http://www.nichcy.org/ kids/index.htm

Educational Resources:

The US Department of Education

The Office of Civil Rights

How to file an OCR Complaint

Inclusion Press Homepage

What Does School Reform Mean to My Neighborhood?

Finding Time for Teachers

T.H.E. Journal

The National Association of State Boards of Education (NASBE)

ERIC Clearinghouse on Disabilities and Gifted Education

Family Education network

Center for Education Statistics, U.S. Department of
Education

Education Resources Information Center (ERIC) 

IDEA Home Page

 US Department of Education Regional Educational Laboratories 

CDC Adolescent and School Health Information

Center for Social and Emotional Education

Steps to Success: Communicating with Your Child's School

Learning Leaders

   

Law & Legislation Resources:

Courts & Case Law

Rutgers Law Library Search Engine

Pointers to FTP sites to download court decisions

The Special Ed Advocate - Special Education Law

FindLaw - Cases & Codes

Dept. of Justice ADA Homepage

NJ Administrative Law Search

The Center for Law and Education

US Federal Courts Finder

LawRunner - A legal research tool

Laws & Legal Resources 

NJ Law Network

Legal Services of New Jersey

Electronic Policy Network

The ADA Information Center

Consortium for Appropriate Dispute Resolution in Special
Education (CADRE)

EDLAW, Inc. (Education law)

Thomas Legislative Information

IDEA Practices

Education Law Center

Office of Legislation and Congressional Affairs 

The Law and Special Education

Bazelon Center for Mental Health Law

Community Health Law Project 

NJDOE Code (NOT Special Education Code)

Northeast ADA &
IT Center

 

 

New Jersey Resources

Family Support 
Center of NJ

New Jersey Department of Education

Association for Children of New Jersey (ACNJ)

ARC of New Jersey

New Jersey Department of Human Services

New Jersey PTA

New Jersey Association of School Administrators

New Jersey School Boards Association

NJ Education Association

Educational Resources from US DOE 

Core Curriculum Content Standards 

New Jersey State Resources from LDonline

NJ Self-Help Group Clearinghouse 

Mental Health Association in New Jersey

New Jersey Association of Mental Health Agencies (NJAMHA)

Infectious Diseases Society of New Jersey

New Jersey Speech-Language and Hearing Association 

Other Related Resources for Families of Children with Special Health Care Needs

New Jersey Protection and Advocacy, Inc.

Easter Seals New Jersey 

Division of Youth and Family Services - Adoption Program 

Educational Information and Resource Center 

The League of Women Voters of New Jersey

CeaseFire New Jersey

New Jersey Developmental Disabilities Council

Early Intervention

State Interagency Coordinating Council (Early Intervention)

New Jersey Coalition for Inclusive Education

New Jersey Parents Caucus

Epilepsy Foundation of New Jersey

NJ Association of Partners in Education

Elizabeth M. Boggs Center on Developmental Disabilities

NJ Positive Behavior Support Association

CAMConnect

New Jersey After 3

Website which allows NJ families to confidentially find out for free which benefits they may be eligible for.   www.njhelps.org 

http://www.njcivilrights.org/
disability.html
 
Protecting the rights of those with mental health issues 

NJ Coalition for Bullying Awareness and Prevention

Statewide hotline number: 
(877) NO-BULLY
(662- 8559)

Family & Children's Service has developed a statewide web based resource center NJ-FACES

Jerry Davis Early Childhood Center

http://www.thearcofsomerset.org/
jerrydavis.htm

Parent Support & Resources

Community Connection: New Jersey Statewide Parent to Parent

Parent News

Parenting Resource Center

Child Trends

M.U.M.S. National Parent to Parent 

Mothers' Center of Central New Jersey

Parents Helping Parents

Focus Adolescent Services: Help for Troubled Teens

Parent resource and information centers on the Special Education Network 

Washington Township Public School Special Education Parent Teacher Organization (SEPTO)

 

 

General Disabilities Resources

Federation for Children with Special Needs

Internet Resources for Special Children (IRSC)

Disability Statistic Center

Special Needs Resources Online 

Developmental Disabilities Health Alliance 

The Disability Connection

www.disabledperson.com
An online magazine and resource site that is geared
specifically towards the person with disabilities.

www.e-bility.com
links to a range of
resources, services and products of interest

Family Center on Technology and Disability

Disability Resources Monthly (DRM) Guide
to Disability Resources on the Internet

 Elizabeth M. Boggs Center on Developmental Disabilities

KASA-Kids As Self Advocates

Language
Policy Research Unit (LPRU), of the Education Policy Studies Laboratory
(EPSL) located at Arizona State University

Special Needs Family Fun offers family fun and
special needs resources to enhance the fun and quality
of family life for families with disabilities.

Kids on the Block- disability sensitivity/awareness for kids
http://www.kotb.com 

Brave Kids-for children with life threatening illness
http://www.bravekids.org 

School Cafeteria Obligations to Accommodate Students with Special Dietary Needs

Transition website for teens

"PATH-Parent Action Transition Handbook". www.njsilc.org
Click on the bottom right
 

Early literacy parent child activity materials in English and Spanish available FREE!

To download materials go to www.walearning.com and click on the purple button that says "Free Parent Education Handouts" on the home page.

 

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Links to Specific Disabilities/Disorders
(listed in Alphabetical Order)

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

A

Acoustic Neuroma:
Acoustic Neuroma Association

AIDS Dementia:
National Institute of Allergy and Infectious Diseases

Alcohol & Drug Abuse:
The Higher Education Center for Alcohol and Other Drug Prevention
National Clearinghouse for Alcohol and Drug Information
National Institute on Alcohol Abuse and Alcoholism

Amyotrophic Lateral Sclerosis:
The ALS Association

Anxiety Disorders:
Anxiety Disorders Association of America
Panic Disorder Education Program

Ataxia and Ataxia-Telangiectasia:
A-T Children's Project
National Ataxia Foundation

Attention Deficit Hyperactivity Disorder (ADHD)/Attention Deficit Disorder (ADD):
Children and Adults with Attention Deficit Disorders (CHADD)

www.addresources.org

Autism, PDD, Asperger Syndrome, Developmental Disabilities:

Autism Speaks Launches Federal Legal Appeal Project
A New Initiative to Help Families in Need Fight for Services, While Establishing and Preserving Important Legal Precedent for All

Autism Society of America
National Association of Developmental Disabilities Councils
Autism Resources Web
Aspergers Syndrome Resources
The PDD Palace Home Page
ASPEN (Asperger Syndrome Education Network, 
Inc.)

Jayna's Website: tons of autism links!
www.talkautism.org
http://www.autismsource.org/
- Nat'l/state/local database of autism resources 
Touched by Autism or another neurological disorder?  A great website to visit...
(http://www.childnett.tv/)

A National Campaign for insurance coverage of ABA 
(http://www.abatcc.solvethepuzzle.org/)

B

Batten's Disease:
Batten's Disease Support and Research Association

Behcet's Disease:
American Behcet's Disease Association, Inc.

Blindness/Vision Impairment:
National Eye Institute
The Lighthouse

Brain Tumor:
American Brain Tumor Association
The Brain Tumor Society
National Cancer Institute
Pituitary Tumor Network Association

C

Cerebral Palsy:
United Cerebral Palsy Associations, Inc./United Cerebral Palsy Research and Education Foundation

D

Deafness:
Boys Town National Research Hospital

Depression/Manic Depression:
Depression Awareness, Recognition and Treatment Education (D/ART) Program National Institute of Mental Health
National Alliance for the Mentally Ill
National Alliance for Research on Schizophrenia and Depression (NARSAD)

Dizziness:
Vestibular Disorders Association

Down Syndrome:
National Down Syndrome Society

Bringing Up Down Syndrome
 
(covering Burlington, Gloucester & Camden counties in NJ)

National Down Syndrome Congress

Band of Angels

Dysautonomia:
The Dysautonomia Foundation, Inc.

Dyslexia:
Dyslexia: The Gift. Information and Resources for Dyslexia
The International Dyslexia Association (IDA)

Dystonia:
Dystonia Medical Research Foundation

E

Epilepsy:
The Epilepsy Foundation of NJ
The Epilepsy Foundation of America

F

G

Gaucher's Disease:
National Gaucher Foundation

Guillain-Barre Syndrome:
Guillain-Barre Syndrome Foundation International

H

Huntington's Disease:
Huntington's Disease Society of America

Hydrocephalus:
Hydrocephalus Association

I - J - K

Joubert Syndrome:
http://www.joubertsyndrome.org/index.htm

L

Learning Disabilities:
Learning Disabilities Association of America
LD OnLine
National Center for Learning Disabilities (NCLD)
Council for Exceptional Children (CEC)
Division for Learning Disabilities (DLD)
Council for Learning Disabilities (CLD)
Ability Online Support Network: Peers & Mentors
BandAids and Blackboards: Nondisabled sensitized to disabled (kids) with a medical problem.
Schwab Learning

Leukodystrophy:
United Leukodystrophy Foundation

M

Mental Retardation:
The Arc

Moebius Syndrome:
Moebius Syndrome Foundation

Multiple Sclerosis:
Multiple Sclerosis Foundation, Inc.
National Multiple Sclerosis Society

Muscular Dystrophy:
Muscular Dystrophy Association

Myasthenia Gravis:
Myasthenia Gravis Foundation

Myositis:
Myositis Association of America, Inc.

N

Neurofibromatosis:
National Neurofibromatosis Foundation
Neurofibromatosis, Inc.

Nonverbal Learning Disorder
http://www.nldline.com 

O

Obsessive Compulsive Disorder (OCD):
OC Foundation

P

Prader-Willi Syndrome:
Prader-Willi Syndrome Association

Q

R

Rett Syndrome:
International Rett Syndrome Association (RSA)

Reye's Syndrome:
National Reye's Syndrome Foundation

S

Schizophrenia:
National Alliance for the Mentally Ill
National Alliance for Research on Schizophrenia

Sjogren's Syndrome:
Sjogren's Syndrome Foundation, Inc.

Sleep Disorders:
Narcolepsy and Sleep Disorders
Society of Light Treatment and Biological Rhythms

Spasmodic Torticollis:
National Spasmodic Torticollis Association, Inc.

Spina Bifida:
Spina Bifida Association of America
Children with Spina Bifida: A Resource Page for Parents 
Spina Bifida Association of the Tri-State Region (NJ, Metro NY, Southern
CT)

Spinal Muscular Atrophy:
Families of Spinal Muscular Atrophy

Sturge-Weber Disease:
The Sturge-Weber Foundation

T

Tourette's Syndrome:
Tourette's Syndrome Association

Tay-Sachs Disease:
Late Onset Tay-Sachs Foundation

Trauma:
Think First Foundation

U

V

Von Hippel-Lindau Disease:
Von Hippel-Lindau Syndrome Family Alliance

Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.
www.vcfsef.org
PO Box 874, Milltown, NJ 08850
(732) 238-8803 or 1-866-VCFSEF5

W

Williams Syndrome:
Williams Syndrome Association

X - Y - Z

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If you know of a website you feel should be included in this listing, please send e-mail to: webmaster@spannj.org. We will try to include it as soon as possible.

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