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Need help with unpaid medical expenses? Family Healthcare Story Book: ISG_HealthcareFinancingFactSheetSeries Where can I find information on my child's condition?
The Statewide Parent Advocacy Network Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care. If families or
professionals have questions on medical issues affecting
Do you have a child with special health care needs? Do you need information about health care or insurance? Would like to help promote responsive, accessible, quality health care and health insurance? Call Family Voices of New Jersey! We provide information, assistance and outreach in working toward better health care systems for families of children with special health care needs in New Jersey. Family Voices tackles medical issues affecting special children such as managed care, insurance issues, SSI, and new changes in special education. We have videos, literature, and a national and statewide newsletter-all of which are free. Family Voices also has a speaker’s bureau for presentations for families and professionals as well. Call us at (973) 642-8100.
Special Education Medicaid Initiative Special Education Medicaid Initiative Schools are sending letters for parents to consent to access Medicaid for related services such as therapies on IEPs. Typically, if the district wants to access employer insurance, parents need to be aware that if they sign consent, it may count against the child's lifetime or yearly cap if their plan was "grandfathered" under healthcare reform and still has a limit on benefits. However, if they have a Medicaid HMO it's a win-win because it doesn't count against the child's cap, and the schools can get federal matches and provide more services. But there's a glitch. If the child has a Medicaid waiver it will count against their medical expenses. What they should do is write that they're not consenting but that the district has made them aware of the Medicaid initiative. They do not need to put the reason why they're not consenting. Otherwise districts get penalized if there's no proof they informed parents. Please note that on page 5 of the regulations it states "In order to avoid duplicating claims, LEA [school district] service claims will not be processed for a student who also receives services under a waiver program." so hopefully if a parent is unaware and signs, it's a safety net. Please note that Medicaid HMOs should not be requesting IFSPs (early intervention) or IEPs (special education) and reducing services at home because a child gets some services at school. The school services are needed for FAPE (free appropriate public education) and home services are medically-necessary so they're not the same. If parents have problems, please contact us or fill out the Medicaid problem form http://www.spannj.org/familywrap/Medicaid_Problem_Report_Form.pdf
Bright Futures:
Family Matters
"Friday's Child" Newsletter Archives
What
is Family Voices? Family Voices-NJ is the New Jersey chapter of National Family Voices, which advocates to “keep families at the center of children’s healthcare,” with a special focus on children with special healthcare needs. We are also part of SPAN’s Family to Family Health Information Center (www.spannj.org/Family2Family) and the Integrated Systems Grant (www.spannj.org/Family2Family/medical_home/Core_outcomes_information.pdf) for children with special needs.
These Are Our Children
These Are Our Principles
NEW! Essential Health Benefits NEW! Supporting patient access to lab results NEW! Part B (special education) and access to family insurance Update on NJ Medicaid Managed Care Changes November 27 MEDICAID_TPL_COVERAGE_guide,_FINAL,_09-28-11 SPAN-hospital_visit_factsheet-revised SPAN-hospital_stay-preparing_to_go_home-revised Healthcare Transition for Teens with Special Needs Healthcare Transition Summary for Teens Spanish Medical Assistance Consumer Centers ARC of NJ summary of NJ Medicaid changes NJ Dept. Human Services FAQ on Medicaid changes Family-Centered Care Self Assessment Tool Cuidados Administrados de Medicaid para Niños con Necesidades Especiales en Nueva Jersey Build a Bright Futures Team for Your Children's Good Health Medical Issues Facing Special Needs Children - Key Issues Testimony
and Letters regarding Health Care Issues
Special Child Health Services County Case Management(.pdf file) Figuring Out How to Pay Your Medical Bills
National Family Voices Organization Website New Jersey Department of Education Website
There are many ways to help us make sure that children with special health care needs in New Jersey receive the services they need! Email us at: OR CALL US AT: OR Send your name, address and phone number to: Family Voices - NJ
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Our children with special health needs are like other children. They
want a healthy, happy childhood. They want to grow up to be productive
adults. They live in our cities, towns and rural areas. They go to
school and enjoy community events.