Advocacy

POLICY ACTION ALERTS

HARD-FOUGHT SPECIAL EDUCATION RIGHTS UNDER ATTACK
School districts and municipalities are pressing state legislators to rollback state mandates. Special education safeguards for children and the burden of proof requirement for district’s have specifically been targeted. Action from parents and advocates is needed.
Find out more . .


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Newark NJ Chapter - Statewide Parent Advocacy Network, Inc.


The Statewide Parent Advocacy Network of New Jersey (SPAN) is a chapter of the Federation of Families for Children's Mental Health (FFCMH). SPAN is a member of the New Jersey Alliance of Family Support Organizations (NJAFSO), the New Jersey State Organization for the FFCMH and the SAMHSA-funded Statewide Family Network for New Jersey. SPAN collaborates with NJFASO and county Family Support Organizations in providing information, training, technical assistance and support to families of children with behavioral, emotional, and mental health challenges, and working to ensure that New Jersey's Child Behavioral Health System provides effective and culturally competent services to children and youth with mental health needs and their families. 
 
For assistance securing services for children and youth with mental health needs, you can contact SPAN's Technical Assistance Specialists at 800-654-SPN (7726); you can also find your county Family Support Organization on the NJAFSO website at
http://www.njalliance-fso.org/ .  For information on New Jersey's System of Care for Children and Youth with mental health needs and their families, go to the webpage of the Division of Child Behavioral Health Services at http://www.state.nj.us/dcf/behavioral/

SPAN's policy education and advocacy activities includes:

Engaging parents and professionals in a movement for comprehensive, coordinated, culturally competent services for children and families across agencies

Training parents to be effective participants in public policy advocacy on issues affecting their children

Parents Engaged in Public Policy

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NJ Early Intervention System Proposes Changes to Family Cost share;
opportunity for public comment! 

ABCD Comments on Family Cost Share Changes
Final Family Cost Share Public Comment Notice

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Public Policy Resources

The New Jersey Coalition for Special Education Funding Reform


Click here
to learn more about New Jersey's upcoming Preschool Expansion


Video Clip from Region 5 Conference
http://www.youtube.com/watch?v=eaxJE_X-u1k


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6th Circuit Lets Parent File Retaliation Suit for Superintendent Reporting Her to Child Welfare


 

 

The Association for the Betterment of Citizens with Disabilities has created a brief report comparing New Jersey's performance to the national average on the National Core Indicators. 
 
The aim of the National Core Indicators (NCI) is to develop nationally recognized performance and outcome indicators that will provide a benchmark (point of reference) for all stakeholders on the performance of their state against the performance of other states in terms of services and supports for people with disabilities.
 
The  synthesis of the most recent NCI report (2007-2008) points out that New Jersey is within the average range for most indicators, and is significantly above in several indicators.  In the area of Systems Performance, New Jersey is significantly below average in many of the indicators and within the average range for several other indicators. 
 
Some of the areas in which New Jersey rates significantly worse than the national average for people with disabilities include:
 
-Choosing their own work or day activity
-Looking at more than one job or more than one home
-Having friends and caring relationships with people other than support staff and family members
-Having a close friend
-Being able to see their families whenever they want
-Feeling lonely
-Being satisfied with where they live and with their personal life
-Knowing their case manager
-Reporting that their case manager helps them get what they need and asks about their preferences
- Receiving support to learn or do something new
-Having adequate transportation when they want to go somewhere

 

 


 

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Participation in State Assessments by Students with Disabilities

No Child Left Behind requires all students to be assessed throughout elementary school until the completion of high school.  For students with disabilities who have IEPs, the IEP Team – which includes the student’s parents – determines whether the student should take the regular state assessment (such as the NJ ASK, GEPA, HSPA), the regular state assessment with specified accommodations, or an alternate assessment based on alternate achievement standards known in NJ as the APA.

The APA is to be used only for those students with the most significant cognitive disabilities.  The decision whether a student is to take the APA is not predetermined by his or her placement or by disability category.  That is, simply because a student is placed in a self-contained classroom or is classified as cognitively impaired does not mean that the student must be assessed by means of the APA instead of the regular state assessment with accommodations.   

Call SPAN for Assistance.  If you believe your district is not following the appropriate guidelines for assessing your child and is pressuring you to agree to use the APA, please call SPAN’s Information Specialists for assistance.  We can be reached on our toll-free line at 1-800-654-SPAN (7726). 

For information of NJ’s guidelines on use of the APA, see http://www.nj.gov/education/assessment/assessment/apa/guidelines.pdf

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Testimony and Letters regarding Health Care Issues
and Children with Special Needs

NEW!! Family Voices-NJ Comments on the Interim Final Rules for Group Health Plans and Health Insurance Issuers Relating to Coverage of Preventive Services Under the Patient Protection and Affordable Care Act

NEW!! Family Voices-NJ Comments on the Patient Protection and Affordable Care Act: Requirements for Group Health Plans and Health Insurance Issuers Under the Patient Protection and Affordable Care Act Relating to Preexisting Condition Exclusions, Lifetime and Annual Limits, Rescissions, and Patient Protections: Final Rule and Proposed Rule

NEW!! Family Voices-NJ Comments on the Pre-Existing Condition Insurance Plan Program; Interim Final Rule

NEW!! Family Voices-NJ Comments on URAC Patient Centered Health Care Home 8/2/10

NEW!! Family Voices-NJ Comments to the National Quality Forum:
Partnership for Applying Measures to Improve Quality
To Provide Input on Measure Selection for Public Reporting and Payment Programs

NEW!! Family Voices-NJ Comments on the Revised Medical Criteria for Evaluating Mental Disorders; Proposed Rule

NEW!! Family Voices-NJ Comments on URAC Patient Survey and Performance Measures for the Medical Home toolkits 10/1/10

NEW!! Family Voices-NJ Comments on Proposed New Rule: N.J.A.C. 1:10B-18.4 Special Hearing Rules: Division of Medical Assistance and Health Services Applicant/Recipient Hearings

NEW!! Family Voices-NJ Comments on the IACC Strategic Plan 7/12/10

NEW!! Comments on Accessibility/Usability of the New Healthcare Web Portal
Submitted by Family Voices-NJ @ the Statewide Parent Advocacy Network

NEW!! Family Voices-NJ Comments on the Health Care Reform Insurance Web Portal Requirements

NEW!! Family Voices-NJ Comments on Group Health Plans and Health Insurance Coverage Relating to Status as a Grandfathered Health Plan Under the Patient Protection and Affordable Care Act; Interim Final Rule and Proposed Rule

NEW!! Testimony of Family Voices-NJ and SPAN on the NJ Early Intervention System Family Cost Participation Policies and Procedures 8/13/10

NEW!! Family Voices-NJ Comments on Planning and Establishment of State-Level Exchanges; Request for Comments Regarding Exchange-Related Provisions in Title I of the Patient Protection and Affordable Care Act

NEW!! Family Voices-NJ Comments on Interim Final Rules for Group Health Plans and Health Insurance Issuers Relating to Dependent Coverage of Children to Age 26 Under the Patient Protection and Affordable Care Act

NEW!! Family Voices-NJ Comments on the Interim Final Rules for Group Health Plans and Health Insurance Issuers Relating to Internal Claims and Appeals and External Review Processes Under the Patient Protection and Affordable Care Act

NEW!! Family Voices-NJ Comments on the Patient Centered Medical Home 4/7/09

NEW!! Testimony of Family Voices NJ @ SPAN & the Statewide Parent Advocacy Network
on NJ‟s 2011 Maternal & Child Health Block Grant Application & State Needs Assessment

Family Voices comments on the CMS Medicaid Program: 
State Flexibility for Medicaid Benefit Packages

Family Voices comment on the CMS Interim Final Rule for Medicaid Optional State Plan Case Management Services

Comments of Family Voices-New Jersey at the Statewide Parent Advocacy Network on the Governor’s Commission on Rationalizing New Jersey’s Health Care Resources

Family Voices comments on the CMS Proposed Guidelines on Rehabilitative Services

Family Voices Comments on IDEA Part B SPP & APR

Family Voices comments on the CMS Proposed Quality
Measures for Medicare Special Needs Plans

Family Voices comments on the Proposed Early Intervention
System Single Point of Entry-Model II
  


Family Voices-NJ comments on Proposed IDEA Part C Regulations for Early Intervention  


Testimony of Family Voices NJ on the 2009
Maternal & Child Health Block Grant


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Aversives and Restraints
Adobe Acrobat file (.pdf)

Contents

  • Eight Frequently Asked Questions about Matthew’s Law

  • What are Restraints and Aversives?

  • Practicing Restraint

  • Restraint and Segregation

  • The Double Standard

  • SPAN Testimony at DYFS Reform Plan Hearings

  • A.P.R.A.I.S. APRIL 16, 2004 – PRESS RELEASE

  • FAMILY ALLIANCE SCHEDULES "LUNCH + LEARN" FOR NJ LEGISLATORS

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