New Factsheets on Healthcare Financing for Children with Special Health Needs!
The series of ten fact sheets includes information on eligibility for and how to access the key healthcare financing resources available for children with special health needs in New Jersey. To access these resources, go to
Fact sheets include
- Catastrophic Illness in Children Relief Fund
- Charity Care
- Child Behavioral Health
- Early Intervention (infants and toddlers birth to three)
- Federally Qualified Health Services
- Mental Health Parity (in public and private insurance)
- NJ Family Care (Medicaid and State Children’s Health Insurance Program)
- Special Child Health Services
- Social Security Disability Insurance (SSDI), and
Supplemental Security Income (SSI).
Emergency Information Form for Children With Special Health Care Needs
The American College of Emergency Physicians and the American Academy of Pediatrics have developed this important document to help assure prompt and appropriate care for Children with Special Health Care Needs (CSHCN) in the emergency room. Now, when these patients present to emergency departments or health care professionals with an acute illness or injury, physicians, parents, EMS professionals, and nurses will be able to use the EIF as a tool to transfer critical information.The EIF will ensure that a child's complicated medical history is concisely summarized and available when it is needed most - when the child presents with an acute health problem at a time when neither parent nor pediatrician is immediately available.
Blank Interactive Emergency Information Form
NJ's Family Leave Insurance program provides up to six weeks of partial wage replacement to workers when you take unpaid leave to bond with your newborn or adopted child, or to care for your seriously ill child, spouse, domestic or civil union partner. For more information, click here.
Healthcare Transition for Teens with Special Needs
Healthcare Transition Summary for Teens Spanish
SPAN NJ Family-to-Family Health Information Center Receives Funding
On May 17, 2011, the U.S. Department of Health and Human Services, Health Resources and Services Administration announced the new and continuing awards for the Family-to-Family Health Information Centers. This funding was made available through the Affordable Care Act. Read more at HRSA Newsroom.
SPAN Awarded Grant to Continue to Serve as Family to Family Health Information Center for NJ
SPAN staffer Dianne Malley visited the White House with her daughter to share their story on the importance of Medicaid for children and youth with special healthcare needs. Click here to read Dianne's story.
Click here to access a video, blog entries, and other stories about the White House
Here is a video from our White House Visit! Check it out. http://www.youtube.com/watch?v=hLA9PgJoOUo
A story by Meg Comeau of the Catalyst Center can be found at http://sph.bu.edu/insider/Recent-News/busph-staffer-meets-with-white-house.html
Health Care Reform Extends Federal Employee Health Benefits (FEHB) To Children Until Age 26
To access a series of short videos in English and Spanish on preventing errors in your child's health care (The Basics, Going to the Hospital, Having an Operation, Lab & Medical tests, and Taking Medicines Safely), go to:
The overarching purpose of SPAN's Family to Family Health
Information Resource Center is to provide the information and
support that families of children and youth with special health care
needs require to effectively partner in decision-making at all
appropriate community-based systems of services for their children.
goal of the Family to Family Health Information Resource Center
is to improve
the participation of families of children and youth with special
health care needs as partners in decision-making and their
satisfaction with the services received by their children and
The Family to Family Health Information Resource Center will help
families make informed choices about health care to promote good
treatment decisions, cost effectiveness and improved outcomes;
provide information regarding the health care needs of and resources
available for children and youth with special health care needs;
identify successful health delivery models; develop and help
implement models for collaboration between families and health
professionals, including health care providers, managed care
organizations, and state agencies; and conduct outreach to and
provide training and guidance regarding the care of children and
youth with special healthcare needs to families, health
professionals, schools and others.
The Family to Family Health Information Resource Center will
coordinate, facilitate, and provide training to parents of children
and youth with special health care needs, providers, and other
stakeholders on relevant issues through workshops and conferences;
provide direct technical assistance and facilitate peer-to-peer
technical assistance including information and referral, short-term
assistance, and in-person assistance to families; collect,
develop/revise, and disseminate to families and others, information
on relevant issues to meet identified needs and/or gaps in
available, culturally competent, family friendly materials; provide
intensive family support to targeted immigrant and limited English
proficient families of children with significant disabilities and
special health care needs; and provide
input & feedback to the Maternal Child Health Bureau & state
agencies on the ongoing operations of technical assistance and
training activities to inform policy decisions. Each
year, 4000 families and professionals will participate in training;
4000 families and professionals will receive telephone or email
technical assistance; 500 families will receive more intensive
support; over 115,000 families and professionals will receive
information through newsletters, newspaper articles, and website
access; 15 pediatric practices will participate in medical home
sessions; and the family perspective will be represented in 250
policy meetings on topics that impact children and youth with
special healthcare needs and their families.
As part of
this project, SPAN Family to Family will:
Conduct focus groups
with families and evaluate information obtained from volunteers to
determine best approaches to reach diverse families of children and
youth with special health care needs
Develop regional and county based
Family Health Resource Centers to provide training, technical
assistance, and leadership skills development of families.
Design educational materials,
forums and training sessions to supplement existing training and
educational programs and provide training and information-sharing
opportunities to parents, providers and stakeholders.
Provide direct peer-to-peer
technical assistance to expand the capacity to respond to technical
Collect and disseminate, through
methods such as an existing website and newsletter, information on
relevant issues as well as develop original materials to assist
children and youth with special healthcare needs, parents,
providers, and stakeholders with information on topics such as home
health care, and home and community services and supports.
Collect and analyze data to
identify measurable outcomes and effective strategies in
serving children and youth with special healthcare needs determine
satisfaction levels, and to track intake, utilization, and costs.
Coordination: 21 state
agencies (NJ Department of Health Title V and Early intervention
programs, NJ Department of Human Services Division of Medical
Assistance); disability, advocacy, family support, and health
professional organizations; and universities will partner with SPAN
to implement the project and coordinate services.
Evaluation Methods &
The Family to Family Health Information Resource Center will measure
its effectiveness through surveys, evaluations, and family focus
groups and interviews. 90% of training and technical assistance
participants will indicate the information is high quality, relevant
and useful, and 85% of sampled participants post-training and TA
will indicate that the information and skills assisted them in
partnering with professionals and securing appropriate services.
85% of sampled state agencies, legislators, and policy makers will
indicate that input from parents has a meaningful impact on them.
SPAN's Family to
Family Health Information and Resource Center received initial and
four years of funding from the Centers for Medicare and Medicaid
Services of the U.S. Department of Health and Human Services. The
Center is now funded by the Maternal Child Health Bureau-HRSA of the
U.S. Department of Health and Human Services.
HealthyChildren.org launches KidsDoc Symptom Checker!
HealthyChildren.org has a new interactive tool to help parents
evaluate their child's symptoms. Based on Pediatric Telephone
Protocols, by Barton D. Schmitt, M.D., FAAP, the "KidsDoc
Symptom Checker" allows parents to choose from a wide range of
symptoms, and then follow the symptom decision chart to
determine the appropriate action to take, whether it be home
care or a call to the pediatrician. The tool is also available
as an iPhone application called KidsDoc, providing the same
expert advice when parents are on the go. To access it, go to:
This video explains
to young people with medical conditions or disabilities the importance
of taking care of their health as they transition into adulthood and
take responsibility for themselves. Includes information on taking
medicines, talking with doctors, carrying an emergency health
information card, keeping a health care notebook, paying for health
care, going to college and planning for accommodations, eating the right
foods, exercising and more.
For more information visit this link:
The Milestones Quiz - Text Version »
Know the Difference between Cold and Flu Symptoms
Education Commissioner Lucille E. Davy has
announced the posting of the Department of Education's new web page
related to H1N1 influenza planning and preparedness. Please visit
the following link for the full announcement:
Fever is rare with a cold
Fever is usually present
with the flu in up to 80% of all flu cases.
A temperature of 100°F or
higher for 3 to 4 days is associated with the
A hacking, productive
(mucus- producing) cough is often present with a
(non-mucus producing) cough is usually present
with the flu (sometimes referred to as dry
Slight body aches and pains can be part of a cold .
Severe aches and pains are
common with the flu .
Stuffy nose is commonly
present with a cold and typically resolves
spontaneously within a week .
Stuffy nose is not
commonly present with the flu .
Chills are uncommon with a
60% of people who have the
flu experience chills .
Tiredness is fairly mild
with a cold
Tiredness is moderate to
severe with the flu .
is commonly present with a
Sneezing is not common
with the flu .
Cold symptoms tend to
develop over a few days .
The flu has a rapid onset
within 3-6 hours . The flu hits hard and
includes sudden symptoms like high fever, aches
and pains .
A headache is fairly
uncommon with a cold .
A headache is very common
with the flu, present in 80% of flu cases .
Sore throat is commonly
present with a cold .
Sore throat is not
commonly present with the flu .
Chest discomfort is mild
to moderate with a cold .
Chest discomfort is often
severe with the flu .
to wash your hands with soap and water; use hand
sanitizer if soap is not available;
use a tissue or your sleeve to cover your mouth or nose
to prevent the spread of germs if you are coughing or
get the H1N1 flu vaccine if you are in one of the
priority groups; and stay home when you
sick. Further information on the flu is available
Over 100,000 children are eligible for FamilyCare
in New Jersey, but haven't enrolled yet. SPAN, in collaboration
with the Association for Children of NJ, has agreed to be the lead
agencies for NJ Covering Kids.
Covering Kids is a national movement reaching out
to families who may not have medical insurance. FamilyCare covers
not just children, but parents in low-income families. For more
details, call (800)701-0710 or visit
Information is available in multiple languages.
Special Education Medicaid Initiative
Schools are sending letters for parents to
consent to access Medicaid for related services such as therapies on
IEPs. Typically, if the district wants to access employer
insurance, parents need to be aware that if they sign consent, it
counts against the child's lifetime cap on benefits. However, if
they have a Medicaid HMO it's a win-win because it doesn't count
against the child's cap, and the schools can get federal matches and
provide more services. But there's a glitch. If the child has a
Medicaid waiver it will count against their medical expenses. What
they should do is write that they're not consenting but that the
district has made them aware of the Medicaid initiative. They do
not need to put the reason why they're not consenting. Otherwise
districts get penalized if there's no proof they informed
parents. Please note that on page 5 of the regulations it states
"In order to avoid duplicating claims, LEA [school district] service
claims will not be processed for a student who also receives
services under a waiver program." so hopefully if a parent is
unaware and signs, it's a safety net.
The Centers for Disease Control and Prevention (CDC) has put
together a short video to help answer questions that parents may
have about childhood immunizations. "Get the Picture: Childhood
Immunizations" was released on April 13, 2009. The video is
approximately six minutes long and features a group of mothers
discussing vaccines with an expert from the DC. The website includes
a full transcript, plus instructions for downloading or sharing the
video via Facebook, Google, or other sites.
To access the video, go to
ATTENTION ALL 5th GRADE
NEW VACCINES REQUIRED!
Helping Your Adolescent Stay Healthy
Vaccination Awareness Website
part of our Family to Family Health Information Center, we are providing
information related to the issues of health care for children with
special health care needs. Some links are specific to New Jersey,
but there are many that will be a help to everyone.
Below is a recent
listing of website links that we have found valuable and hope they will
be of benefit to others.
you have found valuable links that you would like us to incorporate into
future digests, please send them to Diana MTK Autin,
Pass It On! - Family2Family Newsletter
January - February 2007 Issue
Futures Health Tips for Kids
you have a child with
special health care needs?
you like to help families like yours meet their
needs and their own?
Resource Parents volunteer to provide other parents with emotional
support and information about critical resources for children with
special health needs. Training is provided.
you would like to ask questions or become part of the Health Resource
leave your name, phone number and county at
email the coordinators at
of the Health Resource Parent Coordinators
will get back to you.
note: Organizations serving
children with special needs are welcome to attend the train the trainer
for their own knowledge and are welcome to volunteer!